We just finish with ME doctor's appointment.
Although we had originally been told that the CT scan taken in Nov after her seizure was normal, apparently the radioneurologist actually found some very subtle areas of apparent decreased density in a few spots. This is suggestive of incomplete myelination (the fatty insulating material that surrounds nerves to help them propagate signals.) Some reasons for incomplete myelination would be head trauma during birth or in the first year of life or a genetic abnormality. The neuroradiologist written recommendation was for an MRI to be performed to clarify what was present in these areas.
Additionally, the EEG that was performed a couple of weeks ago showed frequent sharp slow wave discharges in two areas. One way of thinking about this is that instead of the normal chaotic electrical impulses, there is a frequent flickering burst of current. While this is apparently not usually enough to trigger a seizure, under the right conditions, it did. The clinical interpretation of this abnormal EEG is partial epilepsy with potential epileptogenicity.
One troubling aspect is that the areas of incomplete myelination do not directly correspond to the areas of flickering.
Based on these findings, it was recommended that ME be place on an anti-seizure medication, that an MRI be performed to further analyze the brain structures of affected areas, with another appointment in 3 months and another EEG in 1 or 2 years.
